Will was just a few months old when he arrived in October 2006. He was in the original House of Blessings’ Six. His head was quite large for his body, and though he clearly had a cleft lip & palate, our medical team also had some scans done to determine whether he might also have hydrocephalus (water on the brain). Though all the scans came back mostly negative, Will’s head continued to be grow disproportionately to the rest of his body.
When the other children were starting to roll over, Will was still stuck laying on his back. When they began to crawl, he still was left sitting in a seat, needing full support for his head. And later, when all his same aged housemates began to walk, he still struggled to hold his head up without help. His cleft lip & palate were repaired, and he was a good eater, but his muscle tone was still very weak due to the possible hydrocephalus. At twenty-seven months, he was delayed in all areas of development, unable to talk, feed himself or sit up without assistance.
When Carrie and her team first launched the Little Sparrows Therapy Program in March of this year, she forewarned the staff that therapy results are not immediate like surgery results; progress happens in small steps with long-lasting effects. But Will was one of the shining stars of the therapy program, making huge developmental leaps in just five months. He can feed himself, put his own shoes on, follow his nannies directions and say a few words back, and grab toys to play with. Before he couldn’t play or pick up toys without help, but now he is attending preschool and showing off his smarts! The coolest thing to see is that he’s walking. And he has the absolutely cutest walk–the smallest shuffle-steps I’ve ever seen! But, they do the trick! In five months, he went from being unable to sit independently to walking all over, chattering and giggling with his housemates.
One of Will’s nannies is Wang Ayi, the supervisor nanny in House of Blessings, and I have always loved seeing her with him. She is so affectionate, always kissing his face & talking to him. Even though he struggled and was so delayed, she kept engaging him, playing with him, and working to get him to smile his brilliant smile. She wanted good things for her smart boy, but Will needed the extra push that the therapy team provided.
When people ask how we are different from an SWI, I can point them to the fantastic facilities, the low child:nanny ratio, or our excellent medical team who facilitates so much life-saving medical care, but I am also really proud to tell stories like these. Our hope is that we are place where these extra things–a therapy team that is actively engaged in changing the lives of these kids in small ways every day and nannies that are not allowed to or choose not to abandon the kids who are more difficult.
My hope is that we continue to be committed to these small things that matter Big. I know many of you are faithful to Cover us each day, and I hope you’ll continue to Lift Up the nannies, that they would be encouraged to do more and know that their work matters. Will’s nanny is amazing, but we do have nannies who are tired, who have seen so many of their kids leave, and who find it harder to engage the more difficult needs.
Lift Up our growth that we would be better in the Small Things even as we expand. Lift Up the kids’ medical and therapy/developmental needs, that we would be Wise in meeting them.
Know that we treasure your faithfulness in Loving these kids, no matter where you are!